Alzheimer’s Secret – Highs and Lows

How to help Dementia and Alzheimer’s energy stay moderate not high or low…by francy Dickinson

Ups and downs of Dementia Alzheimers

George up and happy with Mimi’s visit

We just had a great surprise…a long time Twitter friend came to visit! George was up and happy and involved with meeting her and talking to her…but today – he is in bed. Does that sound familiar?

I really wanted to share the Up’s n Down’s syndrome because so many of us have experienced it and it leaves us (as care givers) feeling like we see another person from others.

When George has his family come to visit, he perks up and gives them his attention,  love and laughter. They walk out the door and he takes a crash dive and I have to pick up the pieces. It has happened so many times that I have learned a few tips and I thought I would share them.

You are not going to be able to help others understand that the person they chat with…is the best they can be. The senior is on a high in energy and is performing for them. The visitor sees that person and believes that is how they are on a full time basis. I have often gotten a little lecture about my comments on George’s condition; that they must be exagerated. That is always so hurtful to me.

I want George to be well, to be happy and live a wonderful retirement. I want him to spend time out and about and enjoying his life with his friends and family. But no matter how much I want that for him, it will not happen. George, has Alzheimer’s that means that he has up’s and down’s and I am the one that has to try to keep him within boundaries so his life is as rich as it can be on a daily basis.

As a lay-person, it has been explained to me that each of us lose bits of our working brain each day. If we are healthy those bits are replaced by the body. When a senior has Dementia the replacement of those bits becomes labored and then slows down like molasses. So, if George gets excited and uses up his energy and brain bits on a single event…it takes time for him to recover. He has to restore his body and brain energy and working parts. As the Alzheimer’s moves forward that replacement gets slower and slower and one day, will simply not happen.

That means I have a job…to decide what is worth George having a high and then a few days low. Some times I simply have to say NO, to an event in order to keep him on an even keel.

Here are some ideas to think about when you are making those decisions….should I take George to an event, or have so and so over to visit? Or, should I say NO, and be the bad guy. Thus, giving George a reprieve from a heavy low…that would take days to recover.

TIPS TO HELP YOU MAKE SOLID CARE DECISIONS:

  1. Make sure you remove your own feelings in this decision. This is a hard one; as the spouse of a senior with dementia…my life is involved in each decision too. So I try hard to step back and make my care decisions for the best of George…not the ‘best of francy’.
  2. Has George been having a solid and calm month? Not, the last few days…but the month. Alzheimer’s has a flow and monthly is the smallest amount of time I use. Maybe he has had a month of falls, or bladder accidents and emotional upsets that have been higher than normal. If that is so, then extra visits, events, or celebrations are put on a low burner.
  3. Plan ahead. I have a 4th of July celebration coming up. It is extra important this year because we have lost one family member and gained another. Many of my family is going to be at this celebration and I want George to go. So I am already planning ahead. I am going to make sure he is exercised each day of June.  That he does not miss any of his meds, and has plenty of sleep. I have decided on the day of the celebration I will take things to make sure he can have a mid-afternoon nap and will eat well, with extra sugar to give him energy.  I am planning that far ahead…so he will go through the day with the least amount of stress as possible. If he gets extra tired…I will be ready to leave the event and go home.
  4. Visiting at our home or going out? I find that George is getting more and more attached to the ‘safety’ of his own home. It is easier for us to have a visitor here…one or two at a time. I can remind him of the visit a couple of days ahead. I start to talk about it and then he is eased into the idea of excitement. I make sure he is up early that day and gets ready and then has time to be calm before they arrive. I remind him again of who they are and I always serve food to calm him and keep his energy up during the visit. I keep the visit down to no more than two hours. (as time goes on, this time limit will dip down to no more than 20 min.)
  5. Events out. I have been surprised lately that George does not do well going out to dinner. He does well out at lunch. But dinner upsets him, he is bothered by all the people, the noise and thinks the food is bad…so why take him out? Because I want to keep his mind feeling that going out is ‘safe’ and normal. I have decided that I will only take him out to lunch from no on. The stress of after ‘4PM out the door’ is too much for him. I try to think up ‘out of home’ visits weekly – but make them calm and easy on George.
  6. If George goes out to my sister’s home and visits, he is fine. He knows the home, the people and he just sits and enjoys his time. It really gives him very little stress. If he goes to his son’s home with family, he is fine. But he goes there less often so the stress is higher. Now if he goes anywhere that he does not know the place, or many of the people are new to him – that is no longer good for him. Even though his life has been very social, he traveled a great deal and loves people— George is not his old self. I have to remember that and work around his fears and upsets…and make his life ‘safe’ as much as I’m able to do.
  7. Surprise is not a good thing for George. That is what I try to keep to minimum. If someone is in town and calls to come and say; HI. I ask them to wait a while, so I can approach George with the news and let it sink in. Let him get up and get dressed and not be too rushed. Let him know they are coming and I talk about it with a calm voice and up energy. I ask the visitor to come around 3ish…and to stay for an hour. It can be embarrassing to do this to people…but I have learned that it is worth my discomfort if George can have a nice short visit and still feel well the next day.

The point of the above tips, is to show you how I am now just easing the way for George. I try to keep him in the loop of our daily lives. But I no longer share the heavy stuff. I don’t talk about bills, emergencies like my car needing repair, the chores around the house that need to be done, or the choice of what food to eat for dinner. Those ideas and thoughts would take George into a worry and maybe a depression.

This is where the hard part starts. Because as a spouse, the sharing of daily life is what you do with your spouse. George and I will be married 30 years this September…we have been bestest friends and he had been a business professional. To leave him out of the loop of life’s pressure is totally foreign to me. But I have to ‘man’ up and know that life is now mine to oversee.

What I also have to know inside my mind? That George’s health is important to me. So is my health. That means I have to make decisions that are good for George and are still healthy for me, as the care giver. I often have to say; “I have to come first, in order to have the energy to care for him wisely.”

It’s hard to explain to others, when they just want to stop by and take George out for coffee. Some times its a good thing, some times it’s simply is a NO. Don’t be afraid to be wrong, we all make decsions that turn out to be not the wisest in the book. But do get in the habit of thinking small daily issues through. Take your time; one day of not caring, could mean two weeks of you helping your spouse through a tough recovery. Days of no energy, confusion, anger, depression…that is a hard way to learn that thinking through your daily activity choices is important everyday.

Blessings on all that you do. I wish you well with your decisions. George just had breakfast in bed and I will get him up later to sit in the sunshine for a while. Other than that, he will be resting today…healing after our fun visit with our wandering Twitter friend.  😉   francy

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My Spouse has Alzheimer’s – Why do I feel Nuts??

George in his work days behind the desk

by francy Saunders   www.SeniorCareWithSpirit 

Dear francy; I’m writing to myself…I have been driving my own self – nuts lately. You see my spouse has Alzheimer’s and all too often I get caught up into his memory holes and attitude mal-adjustments. I started to talk to others that give care to their family members or spouses on a full-time basis and they too…were suffering from the side effects of Alzheimer’s care. So I have been taking notes to give all of us ideas to live better and with less stress as care givers to dementia and Alzheimer’s or terminal care seniors. 

IDEAS TO KEEP THE CARE GIVER ON THE TOP OF THEIR GAME:

  1. Two explanations and move into “Just because I said so…” George will repeatedly ask the same question. He might be worried about a family matter and ask me the same question over and over again. The first time I answer with detail and explanation. The second time, I answer in a shorter manner trying to find a memory of our first conversation on the subject. Then by the third time he asks, I give up. I get short in my speech, I get exasperated and by the actual 8-9-10 times…I refuse to even talk about it. Now remember he has the same question, he has forgotten something important to him but I seem to fall into his basket over and over again. So how to change the way I respond? Because as a care giver you must understand that your Alzheimer’s senior is not going to change their point of view, their memory loss or their attitude. I have to be the one that adapts a way to respond by going back to how we handled the terrible two’s. Remember? When the two-year old asks questions all day long, in search of answers to a million questions? You finally are forced to simply state the obvious. “Because I said so, that’s why you will not go out to play in the middle of the night.”
    So, with George I have a two-time rule, I answer the question twice. Then I simply say “politely” I have answered that question in detail before so you will just have to take the “because I said so”. Now you will not get a fun response, but instead of me getting mad and angry…I am able to keep the conversation going, keep the project on track and keep moving ahead. Instead of getting myself upset and ruining the day because I remember the upset…he on the other hand; will forget the encounter and be renewed in no time. This has aided me with reduced frustration.
  2. If they take it apart, know that you can fix it on your own. This does not matter if you are the man or the woman care giver for a spouse, life changes and your old ways have to change. George has started to take things apart. If they do not work the way he wants them to work. Now maybe this is based in truth or maybe it is his perception of something not working. We have had remote controls, microwaves, washing machines, and water heaters all taken apart. Can he put them back together…NO.
    Maybe this does not fit your situation, but the point I am trying to make is that you can and will fix it. Or you will and can learn to do a new household task even cooking, if you simply put your mind to it. I purchased a new remote control and have hidden them so he does not use them. I put the parts back into the microwave/stove fan. Now it is used for a stove fan only and I purchased a new small microwave for the counter top. The washing machine was harder, I had to watch a lot of repair videos on youtube.com and a gal friend of mine helped me walk through the idea of how to put the machine back together. It took a few tries, but we have it working again. The hot water heater is an up in the air project at this time.
    You simply have to tell yourself that you can do things you have never done before. If it’s putting oil in your car, or scrubbing down a bathroom from top to bottom. If it’s fixing a broken blind or learning what are weeds to pull and what are plants to keep. Yes, there is a lot of change and Yes you are the one that will be doing the changing. So just breath deep and figure it out. I start by thinking of a friend or family member I can run the problem by. I then ask someone I know to help me or go to the Internet and read about the project. If I had money I would be paying a person to help me and since I don’t have money I usually wind up doing it myself. But I could also do a barter, I could make cookies for a neighbor guy that could check my car fluids. Or you could pay a local neighbor to cook dinners for you and in return give her money for your food and extra.
  3. Keep your mind clear. When George is in high gear and in the middle of an EVENT…I can not budge him. So I am now doing different things to release him from the stress and me…from the strain. I have a code word for my friend… “Mama Mia” When I say that word on the phone, in person or any time of day or night, it means I really need help and to be ready to come over. I have talked to a few friends and family – I just told them…there are times when George goes into his highest gear and I can not budge him. I need to calm him down before he does damage to himself or our home. So this Code Word that I have chosen and spoken to others about is my release valve. They know that I either need them to come for me or for him. If you think this will never happen to you…I honor your way of care giving. But I ask you to trust me, you will need to use this code and it is easier to set it up ahead of time, then spend an hour on the phone in the mid-crisis stage trying to make sure your family or friend believe the situation is important.
    People may say they will do anything you need…but when push comes to shove…they tend to disappoint. So this word is my friendship test and I let them know it ahead of time. If they do not help me, they will not be bothered by my call again for ANYTHING. It is that important to me. I have been left all alone in the middle of chaos and all I needed was someone to release my stress and calm down George. They not only did not come but gave me a lecture on how George did not really show any signs of Alzheimer’s. Those folks no longer exist in my life. I need the kind of friend and family that can understand I count – as much as George counts…and my need for support is only asked of them, if it is emergency EVENT.
  4. Keep life on paper. This has helped me a lot. I am constantly interrupted from my daily chores, tasks, business making duties and personal care. So now I am writing down a checklist to remind me of what and where I was when I was interrupted and a notebook so I can remember what ever was on the top of my mind when I had to run to George’s aid. I can not yell at him to wait a minute; that would mean that the remote control is then dismantled. So it is easier to jot down a note to myself, like a bookmark on my life tasks. This way I am not always trying to catch up, or feel like I have no control or feel like I can not remember anything myself. I am in charge of my life and when I can return to my task I know where I left off and where to begin.
    I even use paper for George to write down things that he feels are important that I am ignoring. Like he wants me to cut back his pills. When I give him his pill list I ask him to choose the ones he does not want to take. He sees the pills, the reason for taking them and then says well, OK….but then this is repeated in 3-4 days. So now I have him check the pills and if he says OK, I write it down: George OK’d his pills on friday the 13th– and he signs his name to it. So the next time he asks me, I can show him the paper and he is calmed down and goes about his way. Easier on him…easier on me.
  5. Medications in proper time make a life change for positive. If you think you can have your Alzheimer’s patient or YOU…forget or be late on their pills….you are living a dream. I find the medications have to be taken with food and on time so they work through the day. If they are late, taken without food or just forgotten all together…I am in big trouble. It means that George will act up for a couple of days, he will be more upset, more forgetful, more out of focus…he may even have a body reaction like a Parkinson’s shuffle or a diarrhea attack. So I try hard to double-check his pills and make sure he takes them when I give them to him. This is different for everyone, but even the supplements that I give George make a difference. Two days without Joint Compound and George will complain of aches in the knees. Six hours after a missed Zoloft he will start showing signs of upset. The day after a night pill has been forgotten he will have the runs. The day after a missed morning med with Zoloft and he will still be having upset. Even if he took his current pills the body is missing the medication from the day before and his personality is touchy.
    I personally take supplements and find that I get tired, have  joint pain and just do not click well- without my pills each day. So I have routines in place that mean we both have breakfast and pills…no matter what the day has before us. We do this if we stay in or go out. I repeat the process for his evening pills…I make sure they are taken after dinner and then give him a treat, dessert. This is a must keeping both of us on the top of our game, not fighting to stay afloat without our meds and supplements.

I hope these tips help. I’m in the process of working out a family problem at this time and I’m so down about it. Do you get down? Do you feel like life is simply overwhelming? We all do you know. So remember if depression is more than a week of low emergy and emotions…be sure to get your doctor’s advice on your own health and need for an emotional boost. Medications are a wonderful way to keep the quality of care giving high during times of difficult behavior. Some folks believe that asking for emotional drugs is wrong, they should just have a stiff upper lip and walk on. That is so yesterday. Drugs have been designed just for those experiencing extreme emotional pressure. It does not have to be a life long medication commitment, it’s just a way to help you through a rough time. Long-term stress reflects back on your heart and any ailment that is floating around in your system. So eat well, take your supplements and get a check-up yourself. YOU are the one holding the stick that keeps all the dishes spinning in the air…get help…those dishes can get heavy all alone! 

Read about my book that can help you with loads of other tips and tricks to keep care giving easier for spouses and family!

 Francy with Missy  Come and enjoy more info at www.SeniorCareWithSpirit.com   

  PS: 

 DONATE: I spend time-sharing with hundreds of families all over the US so they can cope with caring for their senior. I’m at home with my husband, George, on a full-time basis and I always appreciate a donation for my time-sharing with you on this site. I thank you for your kindness…and ask that you share my site information with those that you know that are caring for seniors — francy 
 
 Join my Newsletter Listing: I just got the August issue finished…I send out a newsletter and talk about the behind the scenes of daily care giving with George and clients. You’ll also hear about Missy and my crazy, busy life with joy – in the middle of chaos. Its a more personal look at Alzheimer’s. When you click and go to my home page it will take you through the sign up with your name, city and email and I will send you a small thank you gift Free…for your time. I will hold all your information private. You will receive a monthly newsletter and can remove your name any time from my listing. And once again I would appreciate you spreading the news about my work, there are  a lot of care givers out there that could use someone to talk to and get ideas back. Thanks so much – francy

If Your Senior Goes to ER – Are YOU Ready?

by francy Dickinson

Mother in Hospital visit by her Pup

There I was standing in mother’s room in our home and she was not doing well. It was time to take her to the hospital. I had been through this before and I was running around her room trying to pack a bag. All of her meds in a plastic ziplock, slippers, her hearing aid case, her eye-glass case, her robe, on and on as I am zipping from one side of the room – pulling open drawers and grabbing what ever my mind said to grab, then darting back to check on her. My husband is coming in the room, getting her up and into her wheelchair and I am covering her with blankets so we can wrap her warm for the drive to the hospital.

Once there she is taken into the ER and I’m asked to fill out papers. I can hear her calling my name. Mother could not hear and she was frightened and needed me but I was filling out paperwork. It was horrible. I vowed not to repeat this mess again with any of us.
I put together a small plastic envelop filled with information that would answer all the questions that the hospital needed and allow me a quick in and out of the check-in with really just a signature. So I could be by the side of my loved one, not answering questions and pushing a pen around. Check and done…I know you will find this helpful. My mother passed at 100 yrs of age. But now my self, my friend Cheryl and my husband Georgie all have info packets that stay in the small desk in our kitchen. We are all ready for the ER and no matter how upset or scattered we are when we leave the house for the Emergency Room…we will now have all the required information in our hip pockets or in our purse.
YOUR EMERGENCY ROOM INFORMATION PACKET:
  1. First, I sat down with the bag of mother’s daily medications and read them over and divided them into morning, noon and night. I wrote down the name of the medication, the dose, the amount of daily dose pills, the time to take them and why she was taking them. If I did not know, I called the pharmacy and had them explain it for me. I would ask if it should be taken with food, or before food. Most medications absorb better on a stomach with at least a yogurt or apple sauce taken first, now it was on the paper for me to see and remember.
  2. Once they were all written down, I bought a new pill container that fit her schedule and was large enough for all of her meds and supplements. Yes, Mom took supplements. I studied what would help her, then asked the pharmacy person to make sure it would be OK with her prescriptions. Then I separated the supplements to compliment her medications throughout the day. I added the supplements to my listing of pills and the amount in the supplement.
    Example for you:  
    Vit D3 – 500 units -1 pill- morning – w/food  – (energy and emotional support)
  3. OK, I was now ready. I brought the paper to my computer and started to enter her list of pills and supplements. The top of the page had mothers full name and our phone number. The computer would put down the update date so I could keep it current and correct. I used the outline I had started and did the full listing. As we added or removed medications in times to come, I would just enter the new info into the computer and update the listing. It made the entry easy and fast from that point forward. Trust me so worth the effort when you consider you have to bring the big bag of pills to every doctor appt and now the listing on the paper is updated and easy for the doctor’s staff and you to read and understand. It’s a great thing. Not to mention perfect for travel even if the travel is to visit a close relative for an over night or weekend. 
  4. Now I started to think of the questions they asked at ER check in. Does she have allergies to medications? So I typed in the title and put down a list of medication and food allergies. She had no medication allergies, but she did have allergies to peanuts and rose oil. Believe me, even if it seems pointless to state this, you never know what is in medications, or lotions used for back rubs or veggie stir fry in peanut oil…this is big deal.
  5. They will ask about history: I put down a short history, 4 children, no miscarriages, eye operation to uncross her eyes, and cataract removal, no other medical history of hospital stays. No history of diabetes, blood pressure or confusion. Then I added the medical history of her family: Mother and dad passed with heart ailments, brother with cancer, brother with stroke, sister with Alzheimer’s. There you go – a quick and easy review for any new doctor to take a glance and see that there was clear relationship to her own heart problems.
  6. Now the emotional: Mother is clear of thought, reads even at her advanced age, watches TV and interacts with the news of the day. She does get very upset with her own frail abilities and can get angry in the late afternoons. See? It is stated matter of fact but you get the issues easy and so will the attending physician.
  7. Now her abilities: Mother does not hear well and her left ear is her best and has a hearing aid. Right ear is lost with no hearing aid. Her teeth are false and she has uppers and lower bridge. She walks with a walker at all times or she will fall. She has limited strength in her legs. NOTE: In order for mother to live with us she has to be mobile so she works hard to get around with her walker. She uses a bath chair and commode by her bed at night. She rings for me to come and assist her in transitions during the nite. But does them on her own in the day time.
  8. Food and Drink; Mother is not on any special diet, she eats well and prefers light food. She drinks one coffee per day and is not able to drink water, so juice mixed with water is her liquid for the day.
  9. Her TV habits are easy to understand news with captions or food shows that she can lightly watch and understand.

    Can you see the idea?  All the information that the ER needs, the nurse stations need, the new doctors that are assigned to her called “Hospitalists” need to know……in one place. Easy to read and understand

When I first presented this to the ER hospital check in person she took in a breath and said. “Wow, this is great, thanks I will make a copy and I think everything seems to be here.” KAZZZAMMMM – It worked!

NEXT PAGE: The next page is a listing of doctor and insurance information. I started by going to the copy shop and making a one page filed with mom’s driver lic, her social security, her medicare card and AARP supplement card. It was all there on one page. She could keep her ID in her wallet and I had it in my trusty ER Info Kit.

I then listed her doctors, their speciality, their office phone and fax numbers. I had a small explanation under them:

Dr Anna Kline, General Practice  o/555-222-1234  f/555-233-5678
Mother has been with Dr. Kline for three years and Dr. over sees and does all mother’s prescriptions. We use 90 day Rx and generics when ever possible. Dr. Kline works well with mother and is easy for her to hear and understand.  (Last seen June of 2009)

AT the end of the page: I put a — 

NOTE: I placed my name, relationship and emergency cell phone and stated my place as her Power of Attorney. Her medical information is to be discussed with me before any major change in medication or procedure given.

All of this is in my computer under Mother’s name. I updated it each doctor appointment and it’s printed and ready to go in a clear plastic envelop that I keep in the kitchen. I put a copy of the Power of Attorney in with the above information. That needs to always be presented at the check in for the doctor appointment or the hospital check in.

PLEASE NOTE: Power of Attorney can be done on your own computer. You can buy a great program called Family Lawyer or do a search and the information will be on the Internet. You can buy the paperwork at an office supply store. But the software is really nice to use. Then you sit next to your senior and together answer all the questions that will walk you through the Power of Attorney for Health. (You can also do full Power of Attorney) But the hospital needs this to include you in the informational and decision process for your senior or family member or close friend. By the way the Power of Attorney has to be notary stamped. You can do that free at most banks or real estate offices. This will also require two witnesses. So, I have done it and had mom sign and I wait for two people “unrelated” to come to the house or ask a neighbor. This is a no nothing thing that takes very little time and will pay off as your senior ages and their health diminishes and you are really needed to make decisions in their name. Just as you will need it for a spouse, friend or child. This is an important step in your family health, so taking the time to get this done will rest your mind and be appreciated greatly in times of crisis.

There you go…how cool is that…your packet is done:

 

Emergency Info Kit:

  • List of medications and the details of each and supplements
  • List of the person information
  • List of insurance and ID cards with contact  numbers
  • List of doctors and their contact information and how you use the doctors
  • Your Power of attorney (copy only needed)
  • Name of patient on each page and current date on material that could be unusable if out dated

All of the above are gathered folded and put into your plastic envelop. I used one that had come with an old insurance plan. It worked so handy I looked and found others like it. I slipped in business cards of the hospitals so I would have the call in phone numbers of the nurse’s station. That is it….Gold in an envelop.

OK… so it takes a little while to do the project, but once done you are in order and planned for any emergency. No matter what their age your family members will sooner or later need to go to the doctor or have an emergency. So, do this project and be prepared.You have the information for trips, and everyday crisis that do arise. Your Packet will relieve all the running around when you are in a state of high stress.

Would you like to have other tips to keep your life flowing a little easier? I have a step by step practical home care work book that is perfect for any family. It goes over all the things you ask yourself and wonder about when you’re caring for those that are unwell or elders that need assistance at their home or in yours. I have had such great feed back with my “Senior Care Workbook 101”  that I can say with confidence you will use it with ease.

Thanks for all you do for others…francy

How to Bring Grandma Into Your Home

by francy Dickinson                         www.seniorcarewithspirit.com

Dear Francy: I have decided that Mom just can not keep living on her own and in a state of worry each day. Her health is not ready for nursing care but I know she needs to be looked after more than a drop by each day. How do I tell my husband and kids and where will I put her? I live on a thin budget and I am worried.

Now this is a problem that I can help you with because I did the same thing and I have helped so many others do the transition smoothly. Here are my ideas and tips:

Moving Elders into Your Home Tips:

  1. After discussing it with your spouse and getting their approval, you call a family meeting. You will not be asking their approval, but informing them of the situation and letting them know a new arrival means there will be changes that might not be the most enjoyable. Depending on the age of your kids, let them live in the elders shoes, explain why the change, why the elder is no longer safe in their own home that way the family has a base of understanding that this decision is how we treat and care for family. You make room for children when they are born into the family, you make room for elders when they retire into advanced family care.
  2. Make it clear to your family and to YOU that this is a change that is not going to just go away or get old. This is a commitment on your part and your elders that life will be together through thick or thin. If money gets low, or someone gets unwell in the family, or a move has to be made- the elder is now a part of your family and will be with you for good or bad family times. That is life making room for an elder is a serious decision that once made is made, not changed because of an argument. You do not throw out babies or elders because they are extra work or a pain to live with…so think this step out very carefully and inform all; that this is a commitment of heart and honor on both sides.
  3. Set up some rules of the house so every one can work within a fair basis of comfort living. Kids do not invite friends for an overnight if Grandma is using the living area for her bedroom. Things will change, but the changes do not have to be huge, just considerate on all sides.
  4. Plan your elder’s living area. They need their own room, even if your children have to share a room, that is better than an elder sharing a child’s room. If no extra bedroom is there, then take an area that can be shared like the dining room. Put the big table in the kitchen, living area, or storage. Put up a day bed that can be used as a sitting area during the day. Always give privacy from public areas, you can hang a curtain or a bamboo shade to enclose the privacy for the senior.
  5. Try to bring the senior’s favorite things with them. A good sitting chair, a side table for bed and chair, a little desk or bookcase, favorite books, family memory photos, jewelry, special mementoes and art that can be incorporated into your home. This is the time for them to distribute family things to their children and grand children, not at their death. Do not rent a storage unit. If your elder is going to move in with you and it does not work, they will be in a care facility with little space, so there is no going back to an apartment living for the elder, this is a life change, not a try out.
  6. Paint the area to match the elder if you can. If your home is high energy color reflecting an action family….lower the tones for the elder so they can relax and rest in their space.
  7. Decide on the bathroom the elder will use. You might have them use a half bath and just take a weekly bath or shower in the kid’s bath. Always make room for their personal products.  A basket with their bathroom items tucked on a shelf makes their things private. Young kids do not understand false teeth or Depends. Make sure your family respects the privacy of the elder and no teasing takes place, bathroom humor is not appreciated by a person making a big change in their life.
  8. Keep elder drugs in a place in the kitchen or laundry area. That way it is away from the kids and in a place that can be sorted and the weekly pill try can be filled as well as meds reordered correctly.
  9. Use a closet in the hall or a rack in the laundry room for elder’s clothes, plastic drawers can be purchased for clothing. Sort over elders things and take clothes that fit the lifestyle they have now, not the clothes they wore ten years ago when they were active or working.
  10. Keep the elder with their friends as much as you can. If they go to a faith center away from you, take them back to the faith center once a month to connect. If they have a favorite Senior Center or exercise group try to keep them there or let them visit and replace those activities close to your home. Elders need to know their life has just moved, not changed or gotten lost. Emotional problems often stem from elders losing their friends, spouse, home and all connections…so work on keeping them as connected to their long established lifestyle.
  11. If your elder is into gardening and you are not, let them at it, get them started redoing your front yard and enjoy that the elder is giving back to the family. If the elder loves to cook, let them do a dinner during the week or make the lunches for everyone each day. Figure out how to use their talents with your needs and make room for change on your part as well as theirs.
  12. Hearing impaired does not mean shouting or loud TV. It means getting them a headphone remote for the TV so they can hear it, or putting on the text feature to run text on the bottom of the TV screen. It means turning down music to a normal range and take time to talk facing the elder not on the run.
  13. Careful walking with elders that may trip means removing scatter rugs and use double side carpet tape on larger rugs. It means making sure there are lights to see well in the public rooms and dogs that are trained to love not jump up on people. Think safety. If your kids are older you may have left those safety thoughts behind a long time ago, now get your mind going again on what your elder needs to be safe walking around the house.
  14. If the elder wants to make alot of calls, get them a cell phone and let them  learn how to use it. Then they can call on their own phone without worry about family phone time. Get them their own TV if they need it and a radio or MP3 player with a head phone for music and talk radio listening.
  15. Do not be afraid to ask the senior for money to add to the family income. They can give you a couple hundred dollars a month for food and utilities, even if they are on a small social security income. They can pay for their own personal needs and medication products, specialty foods and clothing, too. Just be fair, do not take all their money and think they will not reflect emotionally to it.
  16. If your senior is part of your family…then you can take them off as a tax deduction. Ask your tax person how to do this before you take that action, but it can help you financially to do this. You can also get help with their house sales investment of money, or reducing their bills. Get help so you do not have to worry about funds for their care, talk to senior care consultants and let them help you with the legal part of your relationship. Remember their home sales will have to pay for their care for a long time, so be wise with the money. It is hard when you are limited on funds to care for an elder, but it can be done with advise.
  17. If the senior is unable to pay for their own medications ask the DR for help with pharmacy company programs. If you need to put the senior on state medical do so, they will pay for the medications and pay you to care for your parent if they are in need of more than just light care. Get a review, be in the know, so the money you spend on your elder is wisely spent.
  18. Make sure your senior has someone to talk to about you and your family living. A faith center person, a neighbor or other family member, that is a third party, should make a monthly visit. Get the elder to talk about their life. They may be afraid to say what upsets them, or they may be filled with upset and anger and need to vent it to make their life easier with you. Emotional health is often not understood until you live with someone, a doctor can also medicate to calm an elder, if you explain your concerns in a letter to him before your elder’s next appointment.
  19. Everyone has odd behaviors even you…so learn to live and let live, small things you have always done may need to change, that is not the end of any one’s world, it is just a change to make life easier for all parties. That is what makes living as a family work, you all have to adjust and talk and love and make changes to make sure each of you can enjoy life together. But elders find change upseting and hard and younger folks can adjust to change much easier, so that should set the tone when making family decisions.

Perfection is not the goal with a senior living with their family. But kindness on both sides is a must. Do not be afraid to have someone come in and talk to the family about problems, questions, ideas or concerns. Talking things out helps everyone. There is your way or the highway is not the way with a multi-generation family. Every one has to make way for privacy and for kindness for each other. Often the experience of grand parents living with children changes the child into a more understanding and caring adult in years to come. That means when it is your turn to need help, your own children will be more open to giving you loving care in your own older age.

Please do go to my website at www.seniorcarewithspirit.com for more ideas. I have a great e-book called Care Giving 101 Workbook that will help you with giving care in your own home or in the senior’s home. It has all the basic home nursing tips and gives you ideas to support yourself as well as your spouse or loved one. These books are very popular with care givers and I encourage you to buy one so you can feel more in power of your situation as the care giver. It can be very lonely out there all alone when you are giving care – I want to make the experience more comforting for you.

I write these blogs to share information that I have gathered in my many years of care giving. I am now tending to my husband with Alzheimer’s and my books and services are how I’m able to stay at home and care for him. Thanks for all you are doing for your own loved one,

blessings. francy

PS I am on Twitter @seniorcaretips and I would love to have you listen to my talk radio show on senior care issues just click the radio button on my home page. The show is on demand so you can listen whenever you have time.

Spouse Giving Care 24/7

by francy Dickinson                           www.seniorcarewithspirit.com

A Talk with Francy; I have this picture in my mind of spouse care. I remember it from almost thirty years ago when my elder uncle cared for his wife with Parkinson’s. He had been a cared for man of leisure all his life because she had worked hard with her own interior design company in Seattle. She had worked long days all week, staying in a small apartment in the city. She would come home to Lakewood on the weekends to care for her husband who never worked a day of their 48 year marriage. She would take him to dinner, entertain with friends, leave him with a clean home, food for the week and bills paid. She worked into her mid- eighties when the Parkinson’s took her abilities away…she sold her business and came home. My uncle started to care for her in his own way. That way was not good. He was a man spoiled with his own life style and she was left alone most of the time.  When you would visit, their home got messy, dirty and then horrid. Her care got lax and her food was awful.  As she laid on the couch unable to move on her own, the room she was in was filled with trash. I worried about that the most; a woman who had filled her life with tranquil beauty was dying with trash everywhere she could see. I would bring dinner once a week and mother, in her mid eighties, would visit every month only to worry the rest of the month. We were unable to make changes, or move her to a care facility or do anything really. There were not the laws that we have now for seniors in care. So we just watched her care go down hill and wondered how my uncle could live his life in this manner. It wounded me and I have carried that frustration with me for all these years.

After my mother passed and I was then free from giving her care – I turned around and found my own husband suffering from dementia. It is a story that millions of people face but when it happens to someone you love so much, it just sends chills down your spine.

I am twenty years his junior and so at first I had a hard time telling the difference from him getting older and the dementia. But what I knew was the man that had given me a life of love and care, was not able to do most of things he had done in the past. So along with dealing with him, I had to change my own life and adjust to his needs. I remembered my uncle and vowed to give my husband solid good care.

Being a care giving spouse is a very odd roll. Part of you is still in the mind set of husband or wife loving your spouse…the other part goes into a roll of care giving mom that has to learn new talents to keep your spouse as well and strong as you can. It is not easy and it gets extremely lonely.

I suppose it’s the confusion that hits you with dementia. It not only consumes my husband’ mind, but it reflects off onto me. After a day of him asking my opinion over and over again, telling me he is going to do a task but never gets to the task- I often forget what he was suppose to do myself. Total confusion, spreads just like the flu. He will head out to the garage for a tool and stay there for half an hour. My worry buzzer will go off in my mind and I will go out to find him cleaning out the garbage can or sorting through the garden tools. He is off in his own world and nothing will bring him back. He is determined to accomplish some unknown task. So, I have to change his mind, I have to interject a new thought in his brain. “George would you come and help me I think the faucet is leaking and the water is going off everywhere?” Back he comes from the garage now re focused on a must do task. When he gets into the kitchen the faucet looks good and I say how good it is he fixed it. He will stand and look at it and wonder about it and I make him a cup of coffee or a sandwich and he moves on to that task. It’s a constant movement to keep him safe, calm and in a zone of happy thoughts.

At the same time, I have to make money. I can not leave the house and just leave him alone for any long period of time. But George is not in any way ready for a full time care facility. I do not make enough money to gift him a care giver each day or pay for a day center to leave him. So, I have to think of ways to make money from home with quick, less then two hour meetings with senior clients helping them find placement in care facilities. I do the research and find the facilities that fit their needs. They meet me at two facilities that I have chosen as the best and walk through them with the family and help them make the decisions. When I do not have a client I write and sell senior care help books and other how to ebooks and do my blog and tips on twitter @seniorcaretips

Once, I arrived back home to find my above stove microwave pulled apart and in a million pieces and my husband trying to fix it. I then had to step in and get him re settled with a new movie on TV…put the parts back as well as I can and then went to the store and bought a new microwave. The worry over him getting harmed or walking away while I’m gone is very strong. But as a working spouse care giver I have to try as hard as I can to keep him safe and still make a living.

I often bring George along with me to keep him busy and even then I worry he will get too stressed to make it through a long meeting with a client. I had a session with a lawyer last week and George just melted in the office, we had to get him outside to walk around and sit him in the car for me to continue and sign papers that were needed. I drove him over to a restaurant and after eating and talking he returned to his calm self and I was able to drive the 25 minutes home without worry.

Each day has its surprises. Some days are calm some are horrid. Some calm days can change in a second with anger and some awful days drive me to the edge. Where I have to take a deep breath and become creative to find a way to solve the current care giving problem. Problems can be solved, they just need the spouse to stay calm within and be creative about how to re focus or find where to ask for help.

My nights are filled with worries and sleep often eludes me. But I try hard to take naps, take breaks with time to meditate and do a lot of deep breathing through out my days. I eat good food and I take supplements that I am more than convinced keep me stronger than not.

I cook healthy food, not heat up frozen and I clean my home, but not with dedication. I talk to a select few that understand I need to vent and I need to laugh. I use my twitter group to release my tension and give to others to sooth my mind. I try to interact with George in a loving way even if I am on edge from an arguing session. I get him to waltz me around the living room, pour me a glass of wine, make my tea or rub my back so he remembers the pleasure of giving and caring for others. I have a good list of things for both of us to do each day…so we stay on a daily routine and I always tell myself that I’m a good and loving person even when I’m mad, as hell, at life.

The part that bothers me is the 24/7. There are no days off…only hours away. There are no – lets take a break weekends away when George gets so confused in his own home, let alone a new place. There are no go and visit your kids or sister when he has to be watched and one slip might mean him getting lost or getting so upset he gets sick. I have no escape, no way out. So, I have to remove that from my mind. I have to give myself a feeling of escape. By reading or watching TV in another room. By working in the garden while he takes a nap. By going out to the grocery store and giving myself time at a coffee shop or the library to read magazines. I have to make sure that he has a friend visit so I can just take a nap or go for a walk. Maybe take him to an exercise place so I can just listen to music or a book on my MP3 player, in the car.

His dementia/Alzheimer’s gets worse everyday…but in very slow and tiny ways. The doctor says he is progressing very slowly and that is good for George. But it is not good for me. I have to pay attention to his food and pills. I have to know when his episodes of anger and gait change are over the limit and we need to go to the doctor to get his meds changed. I have to make decisions for his regular health on a daily basis and it is a continual hardship to care that closely for another person. But I keep in my mind that I am giving a gift, not doing chores. I try to make his forgeting to take pills that I leave by his side at his TV chair- a joke and if they are not taken I remind him, tease him about it and watch him take them.

There are loney times. When I want to just talk to him, as my best friend and tell him about my day or my thoughts for the future. I want to have help with the taxes and the financal problems we have, I want him to surround me with his arms and just hug the world away. I want our close friendship of over 30 years to be there for me when I am doing the hardest job I have ever done, but it isn’t – my friend is already gone. I now stand alone, I stand next to him – but I am alone. Others that come and visit us see us together still – but we are not, he is gone in little ways and the gap grows each day.

I wish I could say, this story has a happy ending, but it does not. I am sitting in the living room typing while he is upset in the bedroom. Mad that he has to get up and dressed at almost three in the afternoon. I can be a difficult mom to him and he hates that part of our life. But what I know is that when they said through thick and thin when we married…I said those words and I meant those words and I am living those words with as much joy and love as I can each day. When the time comes that George is in a care facility I will continue to care for his daily needs in my own way…but just having him near is soothing to me. Someday, he will be gone and I will have all the time in world to do my nails and take lunch with my girl friends. Today, I choose to be next to him and I choose it day by day knowing that I make the choice to love and support him in my own way.

I don’t believe in caring for another until you drop over yourself. That is pointless, every spouse has to make the decision as to what degree they can give and help their loved one. We are all so different, some can care a long time, others can not give hands on care for any time at all…no one is better than the next, it is just who we are. But what I know is that we have to talk and reach out to others for help. We have to not allow ourselves to be all alone and scared, we have to tend to our own needs. If we do not stay strong, our spouse will fall faster and harder.

My tips from the heart? Eat, drink plenty of water, take good deep breaths, talk to your family and friends, kiss your spouse, argue with your mind not your mouth and laugh as much as you can. Joy is being a part of something and I suggest you join me on twitter, or any other support group in person or online. You get so many great ideas to help you through the care giving steps. I have a workbook on my site that gives all the basics in home care giving, take a visit and look, I think it will help you.

But most of all laugh as much as you can at the crazy things around you. Because when you stand back and look at your life it is a bit funny don’t you think?

Blessings, francy

Alzheimer’s Confused with Too Much Change

francy Dickinson                             www.seniorcarewithspirit.com

Dear Francy;My husband is starting to forget who I am, he seems to be able to do tasks and is comfortable, but occasionally he asks me if I come in every day? We are leaving for a week to our cabin and I am hoping some rest away from the house will calm him and help.

I can understand your hurt feelings with your husband’s confusion. There is nothing as frightening as the stage of Dementia/ Alzheimer’s that moves the mind into forgetting close loved ones. I do also understand that one day he may be confused to the max and the next day he may be clear and able to function quite well. You are on track with knowing that keeping him calm and rested can help – but the change of pace to the cabin is not the answer.

Here are some tips to keep Dementia/Alzheimer’s at their maximum clear and calm:

  1. Clear your home of clutter. Your mind can view a room and see the couch, the chair and the front door. But a mind that is confused with dementia sees all the little things on the same level or as just as important as the big things in the room.  Like the foot stool, the table, the papers on the floor, the coffee cup and dessert plate on the table are all on par with the favorite chair and the TV. It’s a different view of the same room. Your job- pare down your clutter around the house. So when a dementia senior is sitting in the room their mind can rest, not be constantly moving from item to item.
  2. Clean up kitchen cabinets, make the cabinet for glasses and cups just that – glasses and cups. It is easier for them to remember what is in the cupboard and then when they open the cupboard what they were looking for is right there. A bottle of aspirin or cup filled with toothpicks will take the dementia mind off of their need for a glass and they will often close the cupboard and forget their task.
  3. Remove anything that could harm the dementia senior. Extra medications- get them out of the easy to find area. If you have been storing your pills in the bathroom cabinet, remove them. You do not want your senior to take your pills in a moment of confusion. Just like you protect toddlers from medications or anything that could harm them, you need to protect the dementia senior, too.
  4. Remove things from the kitchen table, it’s a place to eat, not store bills and papers. Once again, the dementia mind can take one task or chore at a time. To keep their mind active and working well keep the table a place to rest the mind, eat and talk. Not a place filled with boxes, papers and confusion. Clean the area and the mind will rest and see the table as a relaxing place, not a place for them to be distracted with other tasks and not want to eat.
  5. 1-2 days out a week. It depends on how advanced the dementia is for your senior, but going out and about is fine for a day or two a week. It is not good on a daily basis. Take a few days at home, then a day out. Make the day out simple tasks and low people contact. Dementia mind can get tired very easily, what the senior could do last year, is not what they can do today. Keep them down to a short trip with familiar sights. Would you take a toddler out for four hours of running around and then to a big birthday party? NO, it would be way to much for them to handle, that is now the same way your dementia senior is thinking.
  6. Trips to the cabin, to visit family in another city, sightseeing, new places, new people they are all very confusing. Dementia does best with people, places and things that are repeated each day and feel safe. My husband has a sister in Oregon and children in California, he often says he wants to go and visit. On his last visit he got lost and he took about three weeks to calm down and be able to sleep and have good days on his return. Our days of travel are over; his daily routine and happiness are far more important to me than trips to say hi that pull him out of his security zone. I know that retirement means visiting and travel, but dementia means that the mind functions better with familiar and safe surroundings.
  7. Limit the people contact to friends, family and neighbors. George does so well in his daily life, then last month I took him to a family memorial for my cousin. He walked into a church he had never been, surrounded by people he rarely saw and he just blanked out. He was confused, upset, did not know immedite family members and was a fish out of water. We left as soon as possible and did not go to the family home event. I took him out to a quiet lunch, changed the subject to talk about something we do everyday and we went home. I got him calm and in his chair and listening to a new audio-book on his MP3 player. I made an error in judgement, I did not think about his comfort zone and he suffered for it. I should have gone to the memorial by myself and so I have learned a lesson. My life with my husband by my side has now changed and I have to understand and learn to accept that fact, not with joy, but with inner strength.
  8. Keep like with like. If the drawer is for knives, keep it knives, if the pot is for pens and pencils keep it that way. No mixing, no putting off items in with other items. They will be forever lost to you and your dementia senior. Repeat over and over again. Cell phones charges by the entry door. Keys go in the bowl on the counter. One day George will not remember any of those details, but for now while he is in mid stage Alzheimer’s he is comforted by repeated tasks and repeated placement of items he uses often like his cell phone and MP3 player. George lost his garage door opener and we have not found it, I know it is tucked away in an odd place somewhere, but where? I have become quite the cleaning girl now, but it has paid off for me to get rid of items that have not been used in ages and are of no meaning to George.
  9. Doctor told me his dementia patients do better longer when the senior keeps their weight in a healthy range. Alzheimer’s medications often have a side effect of reducing the appetite and the senior starts to not remember or want to eat. So, I have added a routine of 3 meals around the same time each day. I have added desserts back into our life, so there is homemade cookies, pies and cakes ready for his snacks. Yogurt, applesauce and puddings for taking pills. Ensure and Boost for adding protein when he has not eaten lunch. I keep him on schedule and he responds with better eating and better days. If I am busy, out of the house, not feeling well myself – then he goes off his schedule, he forgets to eat and his pills are left on the counter. That is a lot of pressure for me, but I try my best and move on if the day has not worked out well. Life is not perfect and I have to live too.
  10. George needs rest, some days he rests all day, some days he is up and ready for life early. A man made for schedules -is no longer on schedule, I just know I give him his meds and food no later than 9AM so they go to work to help him feel calm and comforted during his day. If he stays in bed after the meal, fine – I will then continue my day and the next day he is up and at um. I ride with life, but I try to stick to the schedule and routine so George feels the days in order and is able to adjust his mind easily to an important day. Because dementia means that each day is important, the next day may be of less abilities and less memory, so today is the day to tackle and enjoy.

I think the fact of the spouse or family of a dementia/Alzheimer’s senior has the ability to give the senior a full and rich life – is a big thing. On certain days it overwhelms me. I try to keep my mind focused on today, to deal with whatever today brings my way. I try to make little jokes about forgetting where George’s coffee cup is ( it has become a continual struggle to find it during the day.) I tell him how much I love him, all day long. If he forgets, I remind him- he is loved. I tell him how nice he looks, how well he did a task and how great it is he finished his meal and brought me the plate. I make a point to touch him and dance with him around the kitchen. I even squeeze his hand or kiss him in public – just to keep him connected. Lately, I stop on a dime and ask him to give me a hug or a kiss, he does it with love – but not without my request. I give him constant reassurance I am here for him and I am not leaving. Each month our life changes, his mind changes and we have to readjust to his new challenges. I get frightened of the changes ahead, so I try hard to deal with the daily change and stay on a pattern and routine that brings my own feeling of safety and comfort as well as George’s.

I know you are feeling very similar things, and I know that tears and heartache are close to the surface of your daily life. But we can do it, we can escort our loved ones on this journey and still be a functioning person at the end. We can find honor and love in our senior even on their worst days and we can find peace and calm in our own hearts in midst of total chaos around us. We are stronger than we ever knew and I am proud of myself and of you.

Please do go to my website at www.seniorcarewithspirit.com for more ideas. I have a great e-book called Care Giving 101 Workbook that will help you with giving care in your own home or in the senior’s home. It has all the basic home nursing tips and gives you ideas to support yourself as well as your spouse or loved one. These books are very popular with care givers and I encourage you to buy one so you can feel more in power of your situation as the care giver. It can be very lonely out there all alone when you are giving care – I want to make the experience more comforting for you.

I write these blogs to share information that I have gathered in my many years of care giving. I am now tending to my husband with Alzheimer’s and my books and services are how I’m able to stay at home and care for him. Thanks for all you are doing for your own loved one, blessings. francy

PS I am on Twitter @seniorcaretips and I would love to have you listen to my talk radio show on senior care issues just click the radio button on my home page. The show is on demand so you can listen whenever you have time.

Senior Home from Hospital, I Need Help!

by francy Dickinson                 www.seniorcarewithspirit.com

Dear francy: Mother is home from a 8 day hospital stay – then she was in the care facility for 20 days. She was still too weak to go to her home so I have her here in our guest bedroom. I am not a nurse, I’m a crossing guard at our local school and I have no idea what to do now?

Well you have just joined the club of many children and spouses that are suddenly faced with care giving and no prior experience to guide them. First, try to stay calm and just know that a lot of things will hit you at once so you need to really stay organized and write things down as you go to make it easier. Keep a spiral notebook for your mom’s care and that will be your bible in the days ahead. I have written a how to book that will help you with the care giving but here is a list of things to do just to get started:

AFTER HOSPITAL CARE TIPS:

  1. Ask questions, the care facility will help you. Ask them if medicare will send in a home care nurse? This in home help is so wonderful. It will be someone to ask questions and to follow their lead with care ideas. Most cities have a few care companies that you can call and ask them if their services are covered with medicare and your mom’s insurance. Ask them what services they have for you and then pick what ever you can afford. Min. have a bath lady once a week, that gives you a break and keeps your mom clean. Your mom will be weak and hard to bath at first- so you will appreciate this service more than you know.
  2. Call the doctor’s office and “make” them talk to you. Ask them what state your mother is in? Ask them to review her needs and how long it will take to get her back to independence, or if she ever will be able to live on her own again? You need to know this. If you are going to take care of her for a month or for years, you need to know. You do not want to have your mother’s things in an apartment for months with rent being paid, if she will never return to the apartment. That money could be used with you to care for her.
  3. Get your mom’s health care directive and power of attorney in place so you can help her make decisions on her health. Plus you can pay her bills and care for her money in her time of confusion. You can get her home ready for sale or her apartment contract adjusted if she has to leave her residence permanently. You can then make a decision for her to be in a long term care facility, retirement community, etc. This is the legal part that has to be done so do not put it off. It may seem like caring for her is just nursing stuff, but it is not…it is all the business of her life that will need help. I have all of the business info in my workbook for you.
  4. Ask for help, if your mom does not have any money and you have very little yourself, get the state to come in and give you advice on how they could help her. She may be able to go on state care or Veterans care and get home help. That way she could return home sooner, or you could take a class and become the legal caregiver and the state would pay you to care for her. You will not know until you call Human Services for Elders and find out what is what in your local area.
  5. Make things easy for yourself; keep her room easy to walk around, remove small rugs and extra furniture. That way you’re able to move around with wheelchairs and walkers. You can set up a commode and a table for her medications and other care items.
  6. Get your mother tucked in when you leave the house. Get her a cell phone added onto your account and have her practice pressing a button that will call you. Make sure she goes to the toilet, is fed and has her meds before you leave the house. Leave her with a small lunch cooler with a protein drink, yogurt and water inside for her to have by her chair. Move her commode into the sitting room she will be using so her movements are limited.
  7. Ask family or neighbors to come and check on her when you are gone. Think in your mind about what could happen while you are gone and then cover all the basis. If you take time off from work, then know for how long. Maybe your mom will only need a good two weeks of care before she is up and moving around on her own. But if it is longer, then what will you do? No matter how hard it is, you have to have a couple of plans of actions so you are not losing your job and income just to help your mother. Make calls, get a couple of plans in place and find people to help you.
  8. Home nursing may not be your experience but it is a lot like caring for a young child. Keep things easy, very clean, and be solid on giving her medications and good food on time. She will have to move to be independent, so she needs to be walking with your help. Exercise, eating, medications on time…that is what will start to build her up again.
  9. Keep kids and long visits out of your mother’s life while she is trying to heal. You do not want her to get a cold or be so tired she gets weaker. Be strong with visits; no kids – 20 minutes- no smoking -only lite conversation-no one sick.  Keep it light and happy or no visits at all!
  10. Keep yourself eating and sleep even if it’s naps in the afternoon. Running to care for someone and adding that to your already busy life is very hard. So, say NO to everything else but the basics in your life and stick to it. Take one of those protein drinks and have it at lunch time for yourself, as well as your mother. Keep yourself strong – you will be living for two people for a while.
  11. Baby monitor, intercom, or remote door bell system, they will all serve you well so you know when your mother needs immediate care.
  12. Your mother may have a special diet to follow, but if not think easy. Think easy to chew, swallow, and digest with her food. Make soups in your crockpot & scrambled eggs before you leave for work. Give her jello, yogurt, puddings and fruit with cottage cheese. Soft foods and easy to digest foods. Her bowels will be off with all the medications and odd foods she has been having. If she has a strange food craving say NO if you feel it will be unwise, or give her a very small amount. No raw veggies or salads those are hard for her to process. Good fruit juices and smoothies are the ticket at first. Watch the dairy products do not over do those and if she is a coffee girl, get her some decaf and keep it an afternoon treat – once a day. She has to have water, so put a little fruit juice in her water so she will drink more than a few sips.
  13. Know and understand her drugs. What is this for, is it for long term or just for her recovery? Ask how to add stool softeners or yogurt for help with the side effects of antibiotics. Go over to the drug store with her medications and they will review them for you and you can write it down and get a weekly pill container that has morning and nite pills. This will make pill time easier.
  14. Remember that open wounds mean extra care, it could turn into a disaster MRSA probem. So, learn how to stay so clean you are squeaky. Wash your hands each time you enter and leave your mother’s care area. Use bleach wipes to go over all surfaces in care area. Keep the care products on a very clean surface so everything stays sterile. Keep the bathroom she is going to use clean to the point of exhaustion. Use a good cleaning solution like a bleach mixture and wipe off counters, toilets, bath, floor and keep it clean, clean, clean.
  15. Wash her clothing separately and in hot water with oxygen cleaner as well as soap. Do not throw her clothing on the floor, put the soiled clothes in a hamper or plastic bag to ready for wash. Do her wash at least twice a week – even if it’s a small wash. Make sure your things and her’s do not touch. You are now Miss Klean
  16. If she is not walking get her up. She can hold on to her walker and you can follow with the wheelchair behind her. Or you can get a waist band that helps the senior stand and walk by you putting it around their waste and then holding on to it, to give them extra steady help. Have her do the PBS- Sit and Stretch. It’s an easy exercise program that will help anyone recover muscles. You can get the program’s DVD’s at your local library.
  17. Swallowing, talking, transition, walking problems? Those need a physical therapy person trained in that area. Ask the doctor and he will write an Rx and those folks can come in to the home or you go to them. It will make a huge difference. They will show you how to help your mom. Good stuff, therapy sessions!
  18. If your mom is really weak and unable to stand without help. You need to learn how to transfer her from sitting to standing, to walking position. Ask for help, a nurse or therapist will instruct you how to do that without hurting your back. It is amazing how easy it can be if you know how. If your mother takes a fall, do not try to pick her up. Call 911 and tell them you need assistance with a fall and the fire department will send EMS services to transfer her and check to make sure she does not need hospital services.
  19. Are you ready if your mother is at the end of her life? Have you talked about her wishes and her health care wishes, and her funeral wishes? Can you sit down and have that talk? If not, ask a chaplain to come and ask her for you. Get it done, if she recovers you can file the information away for a future time.
  20. If you understand what is happening with your mother, what is wrong with her, what part of her mind or body is effected by her condition – you will be able to do research on the Internet and ask the doctor questions to get help with good care. Be strong with your voice and your questions. Understanding what your mother needs is number one, from there you, your family, your friends, your care giving professional can all work together to help put humpty dumpty back together again. If you do not ask, or demand answers you will suffer as much if not more than your mother during the recovery. Giving care is not hard, if you know what to expect – it is the unknown that bothers all of us, so ask questions and learn as much as you can when you are around any professional.

You are doing a service of love, thank you. Most of us will be there at one time or another. It is lonely and I would like to be here for you as you move through the care of your senior. Sharing your fears, frustrations, and hurt feelings will allow you to recover and give your mother good care and positive energy with your love.

Please do go to my website at www.seniorcarewithspirit.com for more ideas. I have a great e-book called Care Giving 101 Workbook that will help you with giving care in your own home or in the senior’s home. It has all the basic home nursing tips and gives you ideas to support yourself as well as your spouse or loved one. These books are very popular with care givers and I encourage you to buy one so you can feel more in power of your situation as the care giver. It can be very lonely out there all alone when you are giving care – I want to make the experience more comforting for you.

I write these blogs to share information that I have gathered in my many years of care giving. I am now tending to my husband with Alzheimer’s and my books and services are how I’m able to stay at home and care for him. Thanks for all you are doing for your own loved one, blessings. francy

PS I am on Twitter @seniorcaretips and I would love to have you listen to my talk radio show on senior care issues just click the radio button on my home page. The show is on demand so you can listen whenever you have time.